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Mum's heartache as 'courageous' girl, 12, dies in her arms after twice battling cancer

A MUM has revealed her heartbreak after her 12-year-old daughter died in her arms following a gruelling battle with cancer.

Brave Demi Knight twice fought cancer in her short life but "made her final journey up to Heaven" on Friday morning.

She died surrounded by her devastated family including mum Mel – with the tragedy described as the "most difficult time of their lives".

A statement on Facebook group 'Help Save Demi's Life' said: "At 7.50am this morning on Friday the 13th of September, Demi Knight, the bravest most courageous little girl I’ve ever had the honour of knowing, took her final breath at home in her Mummy’s arms and made her final journey up to Heaven.

"Mel has asked for this post to go up and for the group to remain open for a couple of days so people can send their condolences and then the group will be shut for good.

"Fly high Demi, it’s time for you to spread your wings and play amongst the rainbow."

What is Medulloblastoma?

Medulloblastoma is a common type of cancer in children aged between three and eight that starts in or near the cerebellum, which receives information from the sensory system, and can spread to other parts of the brain or spinal cord.

The signs and symptoms of a medulloblastoma are usually caused by increased pressure in the brain. Symptoms may include:

  • abrupt onset of headaches, especially in the morning
  • nausea and/or vomiting
  • feeling extremely tired
  • loss of balance and co-ordination which may lead to difficulty walking
  • abnormal eye movements
  • blurry vision caused by swelling of the optic disc at the back of the eye (papilloedema)

In some cases, the tumour can spread to the spinal cord, causing another set of symptoms, such as back pain, an inability to control the bowels and bladder and difficulty walking.

Demi, from Louth, was given the all-clear from brain cancer Medulloblastoma in 2016 but was dealt a devastating blow in February last year that it had returned.

In April, medics told her she had just months to live – with her family frantically trying to raise funds for experimental treatment in America.

Well-wishers calling themselves Demi's Warriors helped raised hundreds of thousands of pounds for the schoolgirl so she could travel to a private clinic in Texas.

But the tumour then spread from Demi's brain to her spine and the agonising decision was taken earlier this year to stop pursuing treatment.

Mel instead used the rest of the money raised by the community to help Demi fulfill some of her bucket list, which was topped by meeting Ariana Grande.

Demi spent her final months surrounded by loved ones in a hospice she was admitted to in May.

Speaking at the time, her mum Mel said: "We are so grateful for everyone’s help and support over the last year.

"If anything we’ve got to spend more precious time with Demi that we wouldn’t have if we hadn’t done anything [regarding treatment] and that is thanks to everyone’s help to keep her treatment going.

“I am devastated, us and Demi have fought so hard.”


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